My son, Merritt, was born with a left clubbed foot and congenital shortening of his left leg. Our journey in understanding his conditions and in seeking the best possible treatments has definitely had its ups and downs. This blog is my way of sharing our experiences. It is my hope that similarly situated parents may use information on this page as a resource and as inspiration. Thank you for visiting!

Sunday, February 28, 2010

Shriners visit coming up this week

Merritt has an appointment at Shriners Hospital in Tampa on Wednesday. We are excited and anxious about this. If you have read my previous posts, you know that we have been given 2 estimations regarding Merritt's LLD. The first at a little over 2 inches and the second at almost 5 inches. I am thinking that a third opinion will really help us to understand Merritt's leg.

Plus, Shriners seems totally awesome! If you haven't checked out their facilities, you can at this link... Shriners Tampa. I watched the online tour and was really impressed.

Well, our appointment is Wednesday morning at 10:30. The whole family is going. So, it should be an adventure. 4 hours in a mini-van with an almost 1 year old, a 2 1/2 year old, a big grumpy 29 year old (yes, that would be my husband, ha), and me - as a nervous wreck! My biggest fear is that this doctor is going to give us even more bad news; that Merritt's LLD is going to be even larger. Honestly, I don't know how I will even handle that.

Please keep us in your thoughts and prayers. I'll let you guys know how it works out!


  1. Some times the not knowing is harder to deal with. Hopefully you will get some definitive answers, as definitive as they can get at this point.

    Surgery is a scary word, bone surgery even more so, but always remember the resilience of these little ones. What they can overcome as a part of normal life never ceases to amaze me.

    Crossing fingers for Wednesday

  2. Found this website and thought of you and Merrit.


    He is a bit young yet, but I think they are brilliant!

    Looking forward to hearing about yesterday's appointment.