My son, Merritt, was born with a left clubbed foot and congenital shortening of his left leg. Our journey in understanding his conditions and in seeking the best possible treatments has definitely had its ups and downs. This blog is my way of sharing our experiences. It is my hope that similarly situated parents may use information on this page as a resource and as inspiration. Thank you for visiting!

Thursday, March 11, 2010

Shriners RULES!

Hi there everyone! Sorry I have been MIA. My laptop is like a toddler magnet!

Anyway, our visit with Shriners went really well. Here's the brief overview. In their opinion, Merritt does in fact have Fibular Hemimelia. We will have to go back every six months for a while until we compile 3 sets of xrays. At that point, they will enter all the data into a Moseley graph and then give us an estimated LLD. If the estimate is under 5 centimeters, then Merritt can opt for the epiphysiodesis,
If the estimate is over the 5 cm, then Merritt will have to have his leg lengthened... and of course, the possibility of 2 surgeries. BUT... and this is my favorite part... . Here's what the PA said, and I quote, "It is possible that you guys have a lengthening in your future, but probably not." WOOHOO! Okay, I'm not going to get my hopes up too high, but I sure have my fingers crossed!

So, on top of all that, the hospital was great! The whole place was really geared towards the children and their caregivers. Tons of toys, playhouses, playgrounds, and even a little gift for each child in the waiting room! Each member of the staff that we spoke to was extremely sweet and helpful. They even made strides to include my older son by giving him stickers and talking to him. That was huge! Turner really felt included and that helped him to stay in a much better mood :)

As for Merritt's foot, we have an appt with our amazing footy man, Dr. Ramono, on March 17th... (deep breaths and fingers crossed. Man, I seem to be doing a lot of finger crossing lately! haha.)

Alrighty all... Mickey Mouse Clubhouse is about the end. My time is up! Hope you all are doing well.


  1. This is Darlene, Mike's Mom. I will say my prayers for Merritt. Good luck.

  2. That would be fantastic news to avoid a leg lengthening.

    Looking forward to hearing how his appointment went last week.