My son, Merritt, was born with a left clubbed foot and congenital shortening of his left leg. Our journey in understanding his conditions and in seeking the best possible treatments has definitely had its ups and downs. This blog is my way of sharing our experiences. It is my hope that similarly situated parents may use information on this page as a resource and as inspiration. Thank you for visiting!

Monday, April 26, 2010

Officially, "Get Merritt to walk week"

I have declared this week "Get Merritt to Walk Week" in our house. Merritt has been so close to walking for months now. Of course walking is going to be more difficult for him than your average baby, I know. I actually had Merritt evaluated by a non-for-profit in our area. The org provides services to kiddos who are in need. My goal was to get Merritt in some physical therapy... for free :) Well, in order to qualify Merritt had to score low on a Patel test (I need to google that and check the spelling... sorry!) Basically, a few specialists sat down with Merritt and played with him while scoring everything about him. He scored WAY to high to receive any services. The whole thing just makes me angry. Merritt didn't qualify because he is an intelligent little guy and because he doesn't have an "established condition." Of course, no one could explain to me what exactly that means. Fortunately, we are in a financial position where we can send Merritt to PT and just pay for it (well, for whatever our insurance doesn't cover!) But what if we couldn't afford it??? The non-for-profit would have just turned Merritt away just because FH isn't an "established condition?" Sorry if I am rambling! Anyway, point of all this... I guess this is where my education will come in handy. I am going to figure out this established condition non-sense and put a stop to it! Anyone with me???!!??

Aside from all that ranting... Merritt is doing well with his elevation on his shoe. I had to take the shoes to be "tweaked" a bit. The orthotist we see has been following Merritt closely and adjusting the bottom of his shoe to better suit the way Merritt stands and is walking. It is pretty cool and very helpful. He even cut off the original velcro for us and added laces. The velcro wasn't holding well at all. Lesson learned... always buy laces!

Hopefully, next week, I will be able to tell you all about how Merritt is chasing his brother around the house!

OH, and just in case any of you were wondering... I PASSED THE BAR!!!! I'm officially an attorney!

Hope all is well with all of you!

1 comment:

  1. Well first off Congratulations! Not ans easy task made even harder with a little one under foot!

    Secondly, I call funding the other F word. Seriously. We also do not qualify for funding so we pay for all of Matthew's p/t on our own. Luckily we can.

    Btw, Matthew was so close to walking when he was about 10 m old but just would not do it. He didn't start until he was 14 m. Not sure if his foot had anything to do with it, but once he started there was no stopping him.

    Good luck, can't wait to see video of Merrit walking!